We are pleased to share these research opportunities with you and your family members. Please click on the links below to learn more.

NEW

Inviting autistic teens and adults

Advancing knowledge of the autistic experience

Volunteers are needed to participate in a research study to help us improve access to autism diagnosis. Researchers at UVA are seeking autistic people ages 16-30 to answer questions and complete surveys. These activites can be done out loud, by writing, online or using AAC.

If you join, you will participate in 1-2 visits. You will receive up to $300 for participating, and results of study assessments can be shared with you free of charge.

You may also be invited to complete optional activities at other visits:

  • Interviews (up to 1 hour)
  • Brain scan using MRI (up to 1-2 hours)

For More Information:

Principal Investigator: Lauren Kenworthy, Ph.D. Dept of Neuropsychology. HSR 220423.

Our study is seeking and welcomes people of all ethnoracial identities to participate.

UVA IRB-HSR IRBHSR@virginia.edu 434-924-2620

Institutional Review Board

UVA IRB-HSR IRBHSR@virginia.edu 434-924-2620

SOAR: Participants Needed: Autistic Teens & Young Adults and their Caregivers

SE NECESITAN PARTICIPANTES: adolescentes y adultos jóvenes autistas y sus cuidadores

The team at Children’s National Center for Autism is seeking teens for a study on understanding transition to adulthood in autism. We want to know what helps them succeed, and what challenges they face as they move into the adult world.

  • Teens must be in the final two years of high school/a transition program to be eligible.
  • As part of the study, participants can receive an autism diagnostic evaluation and/or IQ research report, which can be helpful in getting transition services. 
  • Teens and families are paid for their time and travel.

You can go to the website (https://www.childrensnationalcasd.com/soar) or email Alejandro Todd (DATODD@childrensnational.org) to learn more.

SPANISH

El equipo del Centro para el Autismo de Children’s National busca jóvenes para un estudio sobre la transición a la adultez en personas con autismo. Queremos entender qué les ayuda a tener éxito y cuáles son los desafíos que enfrentan al entrar a la adultez.
• Los jóvenes deben estar en los últimos dos años de la escuela secundaria o en un programa de transición para poder participar.
• Como parte del estudio, los participantes pueden recibir una evaluación diagnóstica de autismo y/o un informe de investigación de coeficiente intelectual (IQ), lo cual puede ser útil para obtener servicios de transición.
• Se les pagará a los jóvenes y a sus familias por su tiempo y transporte.

Puede visitar el sitio web (https://www.childrensnationalcasd.com/soar) o enviar un correo electrónico a Alejandro Todd (DATODD@childrensnational.org) para obtener más información.

SOAR – Studying Outcomes of Autistic Individuals Transitioning to Adulthood

Children’s National Hospital and Children’s Hospital of Philadelphia are partnering on an important new study focused on helping autistic youth build stronger daily living skills and improve quality of life as they transition out of high school.

Researchers are exploring how access to services, self-determination, and executive functioning skills (like problem-solving and planning) affect independence in areas such as self-care, home life, and getting around in the community.

For more information please visit the SOAR WEBSITE or DOWNLOAD THIS FLYER.

Who can participate:

  • Autistic teens or young adults (or those who meet eligibility based on screening)

  • In their last two years of high school or enrolled in a transition program

  • Have a full-scale IQ (FSIQ) greater than 50

This study is led by Dr. Lauren Kenworthy (Children’s National Hospital) and Dr. Benjamin Yerys (Children’s Hospital of Philadelphia) and supported by a grant titled “A Longitudinal Study Identifying Psychological and Service Delivery Targets to Improve Daily Living Skills and Quality of Life Outcomes Among Transition-age Autistic Youth.”

To learn more or see if you qualify, contact Alejandro Todd at datodd@childrensnational.org

 

Project Title: Understanding Well-Being in Families of Autistic Individuals, #7724

Principal Investigator: Sanjana Subbanna (agd3uy@virginia.edu) 

Faculty Advisor: Dr. Zoe Robertson (zms8ya@virginia.edu) 

Researchers from the University of Virginia are looking for caregivers (18 or older) of children/adults with autism to participate in a ~15 minute research study, which will be conducted through an online survey. In the study, you will be asked questions about your experience as a caregiver and related personal attitudes about yourself and your child. This study is a part of a Distinguished Majors Program project for the Psychology Department at the University of Virginia. 

If you are interested in participating, the study can be accessed through this link. The study has been approved by the University of Virginia’s Institutional Review Board (Protocol #7724).