We are pleased to share these research opportunities with you and your family members. Please click on the links below to learn more.

NEW

Research Opportunity for Caregivers

Researchers from the University of Virginia are seeking caregivers of children or adults with autism to participate in an anonymous research study focused on understanding caregiver well-being and family experiences.

About the Study:
• ~15-minute online survey
• Questions about your experiences as a caregiver and related personal perspectives
• Completely anonymous

Eligibility:
• Caregivers age 18 or older
• Caring for a child or adult with autism

Compensation:
Participants may choose to enter a drawing to win one of two $50 gift cards.

This study is part of a Distinguished Majors Program project in the UVA Psychology Department and has been approved by the University of Virginia’s Institutional Review Board (Protocol #7724).

Interested in participating?
ACCESS THE STUDY HERE

For questions, contact:

Research Opportunity for Parents & Caregivers

Georgetown University’s Berkeley School of Nursing is seeking parents and caregivers to participate in a qualitative research study about experiences with the Autism Spectrum Disorder (ASD) diagnostic process. The goal is to better understand what families go through and how healthcare professionals can improve the diagnostic journey. CLICK HERE to view the Flyer.

Eligibility:
• Parent/caregiver age 18+
• Child diagnosed with ASD within the last 2 years
• Live in DC, Maryland, or Virginia
• English-speaking

Participation:
• One-hour in-person interview at a mutually agreed location
• Optional review of interview transcript by email

Compensation:
Participants will receive a $20 Amazon gift card after completing the interview.

Interested?
Complete the interest form here:
https://georgetown.az1.qualtrics.com/jfe/form/SV_9T98kUJggUAoByS

Questions may be directed to ks1920@georgetown.edu

Inviting autistic teens and adults

Advancing knowledge of the autistic experience

Volunteers are needed to participate in a research study to help us improve access to autism diagnosis. Researchers at UVA are seeking autistic people ages 16-30 to answer questions and complete surveys. These activities can be done out loud, by writing, online or using AAC.

If you join, you will participate in 1-2 visits. You will receive up to $300 for participating, and results of study assessments can be shared with you free of charge.

You may also be invited to complete optional activities at other visits:

  • Interviews (up to 1 hour)
  • Brain scan using MRI (up to 1-2 hours)

For More Information:

Principal Investigator: Lauren Kenworthy, Ph.D. Dept of Neuropsychology. HSR 220423.

Our study is seeking and welcomes people of all ethnoracial identities to participate.

UVA IRB-HSR IRBHSR@virginia.edu 434-924-2620

Institutional Review Board

UVA IRB-HSR IRBHSR@virginia.edu 434-924-2620

SOAR – Studying Outcomes of Autistic Individuals Transitioning to Adulthood

Children’s National Hospital and Children’s Hospital of Philadelphia are partnering on an important new study focused on helping autistic youth build stronger daily living skills and improve quality of life as they transition out of high school.

Researchers are exploring how access to services, self-determination, and executive functioning skills (like problem-solving and planning) affect independence in areas such as self-care, home life, and getting around in the community.

For more information please visit the SOAR WEBSITE or DOWNLOAD THIS FLYER.

Who can participate:

  • Autistic teens or young adults (or those who meet eligibility based on screening)

  • In their last two years of high school or enrolled in a transition program

  • Have a full-scale IQ (FSIQ) greater than 50

This study is led by Dr. Lauren Kenworthy (Children’s National Hospital) and Dr. Benjamin Yerys (Children’s Hospital of Philadelphia) and supported by a grant titled “A Longitudinal Study Identifying Psychological and Service Delivery Targets to Improve Daily Living Skills and Quality of Life Outcomes Among Transition-age Autistic Youth.”

To learn more or see if you qualify, contact Alejandro Todd at datodd@childrensnational.org

 

Project Title: Understanding Well-Being in Families of Autistic Individuals, #7724

Principal Investigator: Sanjana Subbanna (agd3uy@virginia.edu) 

Faculty Advisor: Dr. Zoe Robertson (zms8ya@virginia.edu) 

Researchers from the University of Virginia are looking for caregivers (18 or older) of children/adults with autism to participate in a ~15 minute research study, which will be conducted through an online survey. In the study, you will be asked questions about your experience as a caregiver and related personal attitudes about yourself and your child. This study is a part of a Distinguished Majors Program project for the Psychology Department at the University of Virginia. 

If you are interested in participating, the study can be accessed through this link. The study has been approved by the University of Virginia’s Institutional Review Board (Protocol #7724).